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2015 TASH Conference has ended
This year’s theme, “Celebrating 40 Years of Progressive Leadership,” acknowledges TASH’s 40 years of generating change within the disability community and anticipates a brighter, more inclusive future for people with disabilities in all aspects of life. Each year, the TASH Conference impacts the disability field by connecting attendees to innovative information and resources, facilitating connections between stakeholders within the disability movement, and helping attendees reignite their passion for an inclusive world.

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Friday, December 4 • 2:10pm - 3:00pm
Inclusive Research at PSU: Health, Violence, and Community Engagement LIMITED

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Limited Capacity seats available

We share research from four projects at Portland State University: 1. a healthcare toolkit for autistic adults; 2. a study on violence, health, and disability among people with developmental disabilities; 3. a cross-disability computer-based violence awareness and prevention program; and 4. a study exploring experiences of autistic women and women with intellectual disabilities around pregnancy. These studies address topics relevant to self-advocates, collected self-report data, and intend findings for self-advocates, providers/educators, and academics. These studies are uniquely relevant to this year's theme as they include self-advocates as co-researchers; we stand at the forefront of progressive leadership in inclusive research. This symposium shares research from four projects at Portland State University. These studies address topics relevant to self-advocates, collected data directly from self-advocates, and intend findings to be of use to self-advocates and providers/educators as well as to scientists and academics. These studies are uniquely relevant to this year's theme as they include self-advocates as co-researchers; we stand at the forefront of progressive leadership in inclusive research.

First we will share the findings of our studies and highlight the ways in which they are of practical use for self-advocates and providers/educators. Then we will relate the projects together through their participatory action research approach to inquiry. Participatory action research places the people research is traditionally "about" in the position of active collaborators--the research is conducted "with" them. "Action" mandates that the research be for the purpose of doing something that positively impacts the people the research is "about." Our work presents some of the first applications of participatory research with people with significant disabilities. We will share what we have learned with other self-advocates and academics.

As a result of this session participants will be able to
a) identify the importance of including people with disabilities in research as researchers and as study participants,
b) identify three different models for including people with disabilities in research,
c) understand the findings to date of four inclusive research projects at Portland State University: 1. a healthcare toolkit for autistic people, 2. a study on violence victimization, health, and disability among people with developmental disabilities, 3. a cross-disability computer-based violence awareness and prevention program, and 4. a study about the experiences of autistic women and women with intellectual disabilities around pregnancy and pregnancy decisions,
d) identify potential ways to use findings and resources from completed studies in their own lives.

Speakers
avatar for Dora Raymaker

Dora Raymaker

Research Associate, Portland State University
Dora Raymaker, PhD is an autistic self-advocate and research associate at the Portland State University's Regional Research Institute. She also co-directs the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE, http://aaspire.org), a community-campus partnership... Read More →


Friday December 4, 2015 2:10pm - 3:00pm
Portland 1401 SW Naito Parkway Portland, OR 97201

Attendees (0)